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Patient
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Interested in learning about a specific disease or genetic disorder? Want to enroll in a clinical trial? Looking for
qualified trial candidates?
In our "Patient" section you can access local and national supporting resources; learn about
clinical trials, and how to enroll in clinical trials being conducted in your region; acess patient and educational
related forums; and more.
If you have a question or are aware of a patient association or educational resource that we should include,
please submit it through the following: Feedback.
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Patient Resources:
Related Resources:
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August is Spinal Muscular Atrophy Awareness Month.
Families of Spinal Muscular Atrophy has been coordinating a National Awareness Month for SMA since 1996.
Raising awareness of SMA in the general public can help lead to increased resources for SMA research and
better care for SMA patients. The majority of people, including doctors, nurses and community members,
do not know about SMA until it directly affects them. This is where you can help.
 More...
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