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Patient
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Interested in learning about a specific disease or genetic disorder? Want to enroll in a clinical trial? Looking for
qualified trial candidates?
In our "Patient" section you can access local and national supporting resources; learn about
clinical trials, and how to enroll in clinical trials being conducted in your region; acess patient and educational
related forums; and more.
If you have a question or are aware of a patient association or educational resource that we should include,
please submit it through the following: Feedback.
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Patient Resources:
Related Resources:
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September is National Sickle Cell Month
Sickle cell disease (SCD) affects people of many racial and ethnic groups. In the U.S., 90,000 to 100,000
people, mainly Blacks or African Americans have SCD. The disease occurs among about 1 of every 500 Black or
African-American births and among about 1 out of every 36,000 Hispanic-American births.
SCD can be a life-threatening condition and social, economic, cultural, and geographical barriers often
limit access to comprehensive care. Advances in patient advocacy preventative screenings, as well as
access to resources, have increased the quality of life and life expectancy of people with SCD. More...
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